The European Paediatric Surgeons’ Association Esophageal Atresia Registry (EUPSA-EAR) is a voluntary international collaboration set up in 2014 to collect data on infants with esophageal atresia/trachea-esophageal fistula managed at participating Institutions.
The EUPSA-EAR is based in the University of Graz and has been approved for use by its Ethical Committee (number 27–259 ex 14/15). It is constituted of pediatric surgical units from different European and non-European countries, whose Leads are EUPSA members, and has two aims: (a) to allow individual centers to compare their results with the other participating centers for benchmarking and (b) to promote retrospective research studies that would provide the basis for prospective studies.
Data on all infants with EA born or transferred to a participating center before any major esophageal surgery are collected anonymously with an online form, cross-checked for conformity, and entered into a central registry database. Data collected prospectively contains information on prenatal period and postnatal hospital care (including surgery if applicable) until hospital discharge (or lethal outcome), and includes demographics, pre-operative, operative, and post-operative management, and outcomes.
Guidelines for the Registry are outlined in the Network Office Registry Rules