The primary objective of the Network Office is to support and promote the development of networks in the field of Paediatric Surgery in order for members to collaborate in research that aims to improve outcomes for children with surgical conditions. Office members have expertise in study design and implementation, data management and statistical analysis.
The Office has well established pathways and procedures for members who wish to perform either a survey of members of EUPSA or a retrospective clinical study. These guidelines are available for download using the links below. All points within the guidance should be addressed prior to submitting any request to the network office.
Click here to download the EUPSA survey guidelines
Click here to download the EUPSA Retrospective study guidelines
The Office would also welcome proposals from members wishing to propose other types of study, for example prospective clinical studies or clinical trials. The Office particularly welcomes approaches from trainee members as well as patient organisations. Any member wishing to propose a study should email details to the chair of the network office Nigel Hall firstname.lastname@example.org
We would encourage all members to participate in studies that are currently open. Please follow the links below for more information or to take part.
Current surveys or studies open to participation
1. Survey on the use of splenic embolization in spleen blunt trauma in children
Background: Splenic injury during blunt abdominal trauma in children is often successfully treated with non-operative management (bed rest and close monitoring alone), even in high grades (American Association for the Surgery of Trauma (AAST) grades 3 to 5) and even if a contrast extravasation exists on CT-scan. Although failure of non-operative management is rare, defining factors predictive for need for intervention may help guide management in this population and avoid urgent open surgery. Splenic artery embolization, even when proximal, preserves the immunological function of the spleen and is a less invasive procedure than open surgery with a low rate of complications. The place and timing of splenic artery embolization need to be defined in the management of spleen blunt trauma in the paediatric population. Aim of the Survey: To assess in blunt splenic trauma in the paediatric population 1) access to splenic embolization, 2) the indications for splenic embolization, and 3) the post-embolization management.
Click here to join the survey
2. Survey on Primary spontaneous pneumothorax in children and adolescents
Primary spontaneous pneumothorax (PSP) is a rare condition occurring in healthy adolescents and young adults in the absence of an underlying lung disease or thoracic malformation. The aim of this survey is to define the current practice of pediatric surgeons in the management of PSP in children. The EUPSA Network Office kindly invites you to participate in this anonymous on-line survey to help to better understand the current practice of pediatric surgeons in the initial management, diagnosis and treatment of PSP in children.
Click here to join the survey
STUDIES ACTUALLY APPROVED by the Network Office
1. International Congenital Lung Malformation Registry (ICLMR) – this new study has recently been approved by the Network Office. The ICLMR aims to document the clinical features, treatment received and outcome of children born with a congenital lung malformation. Cases diagnosed at any stage can be submitted to the registry including prenatally diagnosed cases and those diagnosed after birth. The registry is simply capturing all aspects of these case – there is no requirement for any specific treatment. The aim is that by collecting a large volume of cases across many centres worldwide we can understand more about this rare group of conditions and how to best treat them. The study is led by Mike Stanton is Southampton, UK Michael.email@example.com The study website is www.iclmr.org
2. CONNECT study – this study aims to understand the impact of the COVID-19 pandemic on treatment and outcomes of children with appendicitis. It is a mixed retro/prospective study comparing patients treated during 2020 with those treated in 2019. This international multicentre study is being led by Ramon Gorter in Amsterdam and Agostino Pierro in Toronto and already includes data on over 1500 children. For more information please contact either Paul van Amstel firstname.lastname@example.org or Ali El Ghazzaoui email@example.com
3. SCT study – this study aims to document the recurrence risk for SCT and the factors associated with recurrence. It is a large prospective multicentre study that already involves centres all over the world. It really is a once in a generation opportunity to document the follow-up of children with SCT and should help us understand highest risk groups. The study is led by Ernst van Heurn in Amsterdam firstname.lastname@example.org
Current Network Office Members
- Chairman: Nigel Hall, United Kingdom
- Anne Dariel, France
- Paolo De Coppi, United Kingdom
- Jens Dingemann, Germany
- Takashi Doi, Japan
- Ramon Gorter, The Netherlands
- Mohit Kakar, Latvia
- Leopoldo Martinez, Spain
- Francesco Morini, Italy
- Alessio Pini Prato, Italy
- Sanja Sindjic, Serbia
- Tuktu Soyer, Turkey