The primary objective of the Network Office is to support and promote the development of networks in the field of Paediatric Surgery in order for members to collaborate in research that aims to improve outcomes for children with surgical conditions. Office members have expertise in study design and implementation, data management and statistical analysis.
The Office has well established pathways and procedures for members who wish to perform either a survey of members of EUPSA or a retrospective clinical study. These guidelines are available for download using the links below. All points within the guidance should be addressed prior to submitting any request to the network office.
Click here to download the EUPSA survey guidelines
Click here to download the EUPSA Retrospective study guidelines
The Office would also welcome proposals from members wishing to propose other types of study, for example prospective clinical studies or clinical trials. The Office particularly welcomes approaches from trainee members as well as patient organisations. Any member wishing to propose a study should email details to the chair of the network office Nigel Hall firstname.lastname@example.org
We would encourage all members to participate in studies that are currently open. Please follow the links below for more information or to take part.
Current surveys or studies open to participation
EUPSA member survey on postoperative dilatations following primary reconstruction for anorectal malformations
We encourage all EUPSA members to participate in this survey on dilatations following anorectal reconstruction. It is now open for completion and will close at the end of September 2021.
The aim of the survey is to define variation in current practice around use of anal dilatations following anal reconstruction for anorectal malformation. We are considering a prospective study to compare the outcomes of routine postoperative dilatation versus no dilatation on a range of outcomes (e.g. stenosis, need for dilatation under GA, reoperation, quality of life) following a PSARP/ASARP/anoplasty procedure for anorectal malformations. This survey will be the first step in defining current practice amongst EUPSA members and will help inform a prospective multicentre international study in the future.
Link to survey:
STUDIES ACTUALLY APPROVED by the Network Office
1. International Congenital Lung Malformation Registry (ICLMR) – this new study has recently been approved by the Network Office. The ICLMR aims to document the clinical features, treatment received and outcome of children born with a congenital lung malformation. Cases diagnosed at any stage can be submitted to the registry including prenatally diagnosed cases and those diagnosed after birth. The registry is simply capturing all aspects of these case – there is no requirement for any specific treatment. The aim is that by collecting a large volume of cases across many centres worldwide we can understand more about this rare group of conditions and how to best treat them. The study is led by Mike Stanton is Southampton, UK Michael.email@example.com The study website is www.iclmr.org
2. CONNECT study – this study aims to understand the impact of the COVID-19 pandemic on treatment and outcomes of children with appendicitis. It is a mixed retro/prospective study comparing patients treated during 2020 with those treated in 2019. This international multicentre study is being led by Ramon Gorter in Amsterdam and Agostino Pierro in Toronto and already includes data on over 1500 children. For more information please contact either Paul van Amstel firstname.lastname@example.org or Ali El Ghazzaoui email@example.com
3. SCT study – this study aims to document the recurrence risk for SCT and the factors associated with recurrence. It is a large prospective multicentre study that already involves centres all over the world. It really is a once in a generation opportunity to document the follow-up of children with SCT and should help us understand highest risk groups. The study is led by Ernst van Heurn in Amsterdam firstname.lastname@example.org
Current Network Office Members
- Chairman: Nigel Hall, United Kingdom
- Anne Dariel, France
- Paolo De Coppi, United Kingdom
- Jens Dingemann, Germany
- Takashi Doi, Japan
- Ramon Gorter, The Netherlands
- Mohit Kakar, Latvia
- Leopoldo Martinez, Spain
- Francesco Morini, Italy
- Alessio Pini Prato, Italy
- Sanja Sindjic, Serbia
- Tuktu Soyer, Turkey